"My Own Disablism" Or "The Self-Hating Crip"

I don't know who or what I am anymore, but I feel like a traitor.

No one reads this blog, so I'll recap some events. In November, I got arthroscopic surgery on my left knee because I could no longer stand the constant pain I was in and it was hoped that the surgery would alleviate some of that pain. The fact that the surgery would possibly allow me to walk without a cane for the first time since 2001 almost didn't matter. The success rate was low, but the pain was terrible and I had to risk it.

The surgery worked. Mostly. I should be off the cane by the end of the summer. The doctor says I'll still have to carry a folding cane in my bag, "probably forever" "just in case", but if I hadn't gotten the surgery I'd have been an almost full-time wheelchair user within a year or two.

The pain, however, has improved, but is not gone. Not by a long shot.

I said, often, that if I was just on the cane but did not hurt, I would never have even considered the surgery. And now, after I got it - I'm getting off the cane, but I still hurt. Add to that all my other health issues, most importantly my mental illnesses, and I have gone from visibly disabled to invisibly disabled.

Before the surgery I was afraid that if I could walk normally I'd lose my identity. If I was no longer disabled, I'd cease to be me. I knew that was wrong on many levels, mainly being my disabilities do not define me, but also that even after I'm no longer visibly disabled I'll still be invisibly disabled.

I've always considered other invisibly disabled people to be disabled, so why am I having such a hard time wrapping my head around my mental illnesses, health problems and nerve damage counting?

Not only that, but I feel like I've betrayed the disabled community. When I next see wheelchair-using acquaintances in situations where I would have previously needed to use my wheelchair (like at a comic book convention for example), what will I say? I've formed bonds of solidarity spending nearly a decade being a fairly militant crip. Now I've gone all walky.

I didn't mean to be a traitor to the cause, I just wanted to not hurt all the time. And I couldn't even get that. I feel like I betrayed you all, and for what?

I'm going to keep fighting as I always have, but I don't know what good it will do anymore. When I continue to fight for curb cuts and increased handicapped parking as a person with no mobility issues, I imagine I'll have a hard time being taken seriously.

I don't know why I feel this way. Everyone I know tells me I'm being ridiculous, but they're all able-bodied and mentally-well. This is the first time I've said this to anyone in the disabled community.

So, this is my confession. I'm a disablist, I'm a self-hating crip. Or am I about to lose the right to use that word?

Right now my bipolar is Slightly Depressed.

Right now my pain level is 6.5.

By the way, if you're interested, you can check out my other writing at my geek news website, The Nerd Signal.

Oh yea, I have a disability blog

I know I haven't updated this blog in forever, but I've been really busy with my other writing. I said last time I was considering writing more, I didn't intend to neglect this in the process

Anyway, an update.

My knee is healing amazingly well. I saw the orthopedic surgeon last week, and he was blown away by how well I'm doing. He figures I only need another six weeks of physical therapy, and I should be off the cane completely. My insurance company, however, is of the opinion that I'm done with physical therapy now, and that I get no more visits. Not because they think I'm already better, but because they think I'm not getting better fast enough. So, yea.

What I'm apparently going to have to do, since I might not be able to go to PT anymore, is do even more at-home exercises. I don't really want to start walking around the block, but it looks like I'm going to have to.

At any rate, I'm getting around my apartment without my cane pretty much all the time now, and I've started trying to walk around outside just carrying it. This is something I haven't been able to do since 2001. I still hurt, but much less than before.

My psychiatrist lowered my neurontin to try to help with the constant high side effect I mentioned in my last update. It helped a little bit, but not much. However, the nerve pain came back, but not as bad as it was before. Awesome.

Still having mood swings. As usual, I tend to manic. No change in my OCD, either. But I never expect either of those to change.


Right now my bipolar is Slightly Depressed.

Right now my pain level is 5.

A Long Delayed Updated

Shit, it's been just over two months since my last post. That's not good. I'll take this update in steps, I guess.

1) My Knee Surgery Recovery - I have physical therapy three times a week, and well, it's physical therapy so it sucks. I had an appointment with my orthopedic surgeon on December 11, and he said that I was healing exactly on track. I've been off the crutches for while now and back walking on a cane. My range of motion and stability are improving dramatically, and my weight-bearing has been catching up in recent days (one of my exercises has me standing on one leg for three minutes, and while still quite painful it's getting easier). It looks like I'll probably be getting off the cane in the next few months, and though I don't want to jinx it I have a feeling it might actually be weeks.

However, as I mentioned in previous posts, the only reason I got the surgery was to alleviate the constant pain I was in, walking-without-a-cane was not only not the priority, but racked me with guilt that I'm still feeling. And on a less positive note than what I mentioned above, my nerve pain does not seem to be going away. I am still in a shit-ton of pain all the time. So it looks like I'll likely be walking but in constant pain. Awesome.

My ortho had me talk to my psychiatrist to have her up my neurontin to treat the nerve pain from the CRPS. Since about a week ago, I've been taking two 600 mg tabs in the morning and one at night (I was taking a half a tab at night until Sunday). I was taking two 300 mg caps in the morning and one at night before, to treat my bipolar and OCD. I am not handling this new dosage well at all. I'm dizzy and light-headed all the time, similar to my vertigo spells but not really the same at all. I've basically been high the entire time. Crazymeds says this is normal at higher doses, though, so it's not just me. The question is whether I cut back to a lower dose and try something else for the nerve pain, or keep going and keep looking like a burnout.

He also prescribed lidocaine patches for my knee to help with the nerve pain, but my insurance company doesn't seem to think that the patches are appropriate for my injuries. So I guess I won't be getting those.

I see the ortho again on the 22nd, so I'll know more then. I did call him about the neurontin to get his opinion, but haven't gotten a call back yet.

2) My Mental State - I've been all over the place lately. I've been having all kinds of mood swings. Really severe ones. They've been manic phases, mostly, with a few really bad depressive phases thrown in there for variety. Last week, my bipolar hit me with an especially terrible depressive phase. Of course, it swung back hard into the manic phase that I'm currently in.

3) My Social Security Case - Ok, here's the big news. I talked to a lawyer yesterday. She told me the same thing that my last lawyer told me, though in a much less douchey way. My wife makes makes too much money for me to be eligible for SSI and I've been out of work for too long to be eligible for SSDI. So, while yes, I am probably disabled enough to win, there's nothing for me to win. I've been mathematically eliminated from Social Security Disability. Oh, Math. I thought we were friends.

The advice the lawyer gave me was that when I get the letter with my hearing date, to send it back, saying that I rescind my application and request for hearing. This isn't necessarily the bad news it seems. The way I see it, while yes, I while never get a monthly Social Security check or that hefty lump sum payment, I will also never have explain to a judge how awful my life is or have to justify having hobbies or going out with friends. (Seriously. One judge actually asked me to explain how, if I'm so bad, am I able to have friends and how am I able to do things like go out to eat or go to the movies with them.) This is a massive weight off my shoulders that I can't even begin to describe.

She told me that County Assistance can not take away my health insurance, even though they keep threatening to. But since I get insurance through them because I'm permanently disabled, they can't ever take it away. Ever. This is actually awesome, unlike the sarcastic awesome I usually end paragraphs with.

The lawyer also gave me some information about a program called OVR, which is a vocational training program only for disabled people. It's low-cost and they'll teach you to do pretty much any job you want to learn how to do (provided you pass the aptitude test for it). They even help with job placement. I'm not entirely sure if this will help in my case, because as I've said before, I have at least one, usually two, doctors appointments a week, and most employers won't let you call out crying. But I'm thinking I might go and check out a possible career in writing (as I have some experience outside this not-updated-enough blog).

So, yea, that's where thing's are right now. My leg's healing, but the nerves don't seem do be. My meds are fucking me all up. My bipolar has me all over the place. And my Social Security case is over and I'm alright with that.


Right now my bipolar is Manic.

Right now my pain level is 6.